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You are Forgetting the patient, but you're not alone

Andaman7 founder and CEO, Vincent Keunen explains that current clinical research tools prioritize sponsors over patients, but patients want control of their data via a powerful, private PHR on their smartphone.

I am constantly amused, but most of the time frustrated by all the companies active in clinical research that keep saying that the patient is important. But at the same time, it is obvious that they mainly focus on their own business, which is to execute clinical research.

Yes, in a sense, they work for the patient if they are trying to find new treatments that will benefit them. So, yes, they are working for the patients—but in the long-term. What about the short term?

All the platforms and digital tools I have seen have been built first for clinical research—then add features for patients as an afterthought. Features to simplify the process of the clinical trial. Features to ease the collection of data for the sponsor of the study. Features to motivate the patients to stay in the study.

 

Read more on the link below. 

 

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Patient centricity: a peeling varnish or a true revolution (part II)

Andaman7 founder and CEO, Vincent Keunen explains the challenges of patient centricity in the pharmaceutical industry

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Patient centricity: a peeling varnish or a true revolution (part I)

Andaman7 founder and CEO, Vincent Keunen explains the challenges of patient centricity in the pharmaceutical industry

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Read it in our Digital Archives

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AI, patient engagement, and interoperability: Innovation shaping Clinical trials

Andaman7 founder and CEO, Vincent Keunen, explains how AI enhances patient engagement and leverages innovation and technology to accelerate clinical trial development.

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PharmaVoice’s Crystal Ball: What’s next in drug innovation and clinical trials

Andaman7 founder and CEO, VincentKeunen, recently contributed his viewpoint to the PharmaVoice 2024 predictions that the big industry trend next year will be patient-mediated research. 

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Migrate your data from Lydia to Andaman7

Hello Lydia users,

We are sorry that Lydia has decided to stop their product.  With this, you may lose all your health data...  But we are here to help. Andaman7 is a free tool to manage your health data in complete control.  It’s free because we want to give back to the community, as part of our social project.  Check the story of our founder at http://bit.ly/a7vkblogen

If the tool is completely free for patients, how do we pay our collaborators?  We get revenue from medical research sponsors that need to run clinical trials for new drugs.  We do not sell data but we sell a tool to access patients.  So you might be invited by your doctor to contribute to clinical research in the future. If you don’t want to, fine - you can continue to use Andaman7 for free and none of your data will be used.  If you want to contribute to research, then you can opt in, and decide to share some of your data for research - only after your explicit consent.

We are a “for patients by patients” project, as we like to say.

So if you want to test Andaman7 and migrate your data from Lydia to Andaman7, please send an email to support+lydia@andaman7.com or fill in the form.

We hope we can help you.  Thank you in advance for your trust in Andaman7.

Vincent Keunen - Founder and CEO
With the whole Andaman7 team

 

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Extended list of lab tests… and add your own!

Lucie Keunen - Product Owner Andaman7

 

Written by Lucie Keunen

Product Owner Andaman7

 

Android 4.0 - iOS 4.0

Description

We have greatly extended the list of lab tests available based on numerous users’ requests and most common lab tests usually performed.

Do you still have less common lab tests that you want to keep track of and that are not in the list? Don’t worry! This much requested feature is now available in v 4.0: Andaman7 now allows you to add your own lab tests to the list, giving you an even better control over keeping track of your health data.

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Why is this important?

Lab tests are an essential part of medical diagnosis and treatment. They are used to determine the presence, absence, or levels of specific substances in the body, such as hormones, glucose, cholesterol, and more. Lab tests help doctors identify the root cause of an illness, monitor the progression of a medical condition or the effectiveness of a treatment, and even prevent diseases by identifying any risk factors or detecting potential health problems early on.

There are thousands of lab tests, each with its own purpose and clinical significance. The reason for the vast number of lab tests is due to the complex nature of the human body and the need to understand it better. Various substances can be measured in the body, including in blood, urine, saliva, and tissues.

We have added many common lab tests for you to choose from in the application. However we couldn’t add them all and still preserve the app usability. So we developed a new feature to allow you to add additional lab tests that are relevant to your own specific health situation.

How does it work?

  1. Go to the “Lab tests” section,

  2. Click on the add button,

    • iOS: “+ Add new data” button at the bottom
    • Android: “+” button in a green circle at the bottom left
  3. First look in the list for the lab test you want to track

    • Either by typing it in the search bar
    • Or by browsing the list directly (by scrolling)
      • Icons are there to help you identify the sample (e.g. blood, urine,...) in which the element is measured
  4. If the lab test is not in the list, you can add your own by clicking on “Custom analysis” at the bottom of the list

    • Attention! Before creating your own lab test, make sure that it doesn’t yet exist in the list. It is better to use the lab tests from the list if they are available, as it allows you to gather all data from a same lab test on a unique graph in case data comes from several sources (hospital, healthcare professional in your Circle of Trust, yourself,...)
  5. Type the name of your new lab test

  6. Select the type of unit to use for that element. You can look for it by typing in the search bar or by browsing the list directly

    • Selecting the right unit is important for the accuracy of your data! However, some lab tests don’t have any unit (e.g. INR). In that case, you can simply skip that step
  7. Carefully verify that the lab test and unit you want to add is correct. Once created, you cannot modify it!

    • If that is correct, tap the “Confirm” button at the bottom
    • If there is a mistake, you can go back and edit your lab test by clicking on the back button
      • iOS: Back button is located on the upper left
      • Android: Back button is the built-in button of your phone, at the bottom
  8. Add a first value for your lab test

    • It is important to create a first value now so that the newly created lab test is displayed in your list and doesn’t disappear!

Enter your lab test results and keep track of their evolution on graphs!

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Phone, mobile application, screenshot, andaman7, health application, new feature, lab test

Phone, mobile application, screenshot, andaman7, health application, new feature, lab test

Phone, mobile application, screenshot, andaman7, health application, new feature, lab test

Where can we see it?

In your Andaman7 app, select a record, then look for the “Lab tests” tile in the sections of the PHR.

Recommended article

Version 4 of Andaman7 is now available

 

 

See all product updates

Version 4 of Andaman7 now available

Version 4 of Andaman7 now available

We are happy to announce the release of version 4 of Andaman7

download Apple IOS download Android

  • Add your own lab test to the list
    We have greatly extended the list of lab tests available based on users’ requests and most common lab tests usually performed. You still have lab tests that don’t appear in the list? Don’t worry! This much requested feature is now available in v4: Andaman7 allows you to add your own lab tests, giving you an even better control over keeping track of your health data.

  • Filter and sort data in the timeline view
    This makes it easier for you to find and visualize the health information you need without having to scroll through endless pages of data or look in each separate section of your record.

  • Prescriptions
    In the "Medications" section, you can now also add and/or see prescriptions, i.e. medication prescribed by a healthcare professional. Sometimes, the actual medications that you end up taking slightly differ from what was prescribed, so it can be interesting to see both. Prescriptions are also often present in data from your hospital (which you can import via the services tab in the app); now you’ll be able to see them!

  • Medication diary can be shared
    In the diary tab of your “Medications” section, you can see the medications you need to take, day by day (after you added “Dosing” information on your medications). You can record your medication intakes for scheduled and on demand drugs. In version 4, this medication diary can be shared with your Circle of Trust. You can then help or get help from your loved ones and healthcare professionals to keep up with your treatment.

  • New service to store links to online documents and accounts
    If you regularly connect to an online patient portal or if you have been given a link to an online document (for example a medical imaging test result), you can now store all of these links in Andaman7 for easy access.

  • Data received from health entities: support of additional standard codes and better sorting in the right A7 sections
    Did you know that a lot of your digital health data is codified in order to allow for computer systems to “understand” each other? Several sets of “standard codes” exist, and we extended the list of standard codes we support, in order for you to be able to see the data you receive from your hospital in a “human readable” display.

In addition to these new features, we have also made a range of improvements to the user interface: 

  • Refreshed look across the application
    We've added colors and modernized the look of the app. We've kept the same content for the screens so you don’t get lost in this new version ;)

  • New app onboarding for new users
    Simplification of the app onboarding for new users, including for users downloading the app or one of its white label versions for specific services (such as for research purposes). If you want to know more about additional services that can be set in Andaman7, or white-label versions of our app, visit https://www.andaman7.com/en/additional-services or contact us at b2b@andaman7.com.

  • Clearer display of data history and sharing to the CoT (Circle Of Trust)
    Sharing of data is very flexible with Andaman7, as we want to allow you to decide exactly what data you share for each record (full record or only parts of it), and with whom. You can also decide whether you want the sharing to be unidirectional (for example, only sending data to others) or bidirectional (also receiving updates from others). Given this flexibility, it can sometimes be a bit complex to figure out the sharing configuration set up. We've improved the display of sharing rules in the CoT to make it clearer and thus easier to understand.

These changes have been made with the goal of providing a more intuitive and user-friendly experience, while also ensuring that our product remains powerful and effective. We hope it will make your experience more efficient and enjoyable. 

The latest updates to Andaman7 promise to improve the user experience. With newly supported data (extended list of lab tests, prescriptions,...), data sharing and better data display,… Andaman7 is an even more powerful tool for anyone wishing to take control of their health data.

How Cancer Diagnosis Motivated Vincent Keunen to Build Andaman7?

 

Vincent Keunen shares how two cancer diagnoses in the family motivated him to be a founder and improve healthcare to Dr. Deepak M. for Futur of Health tech.

  1. Can you tell our audience about yourself?

My name is Vincent Keunen. I am the CEO and founder of Andaman7. I have developed multiple medical IT systems, including a secure data exchange platform that is utilized by over 90% of hospitals and family doctors in Belgium, as well as a prevention EHR for managing nearly one million individuals. 

After being diagnosed with leukemia in 2007, and my 10-year-old son with bone cancer soon after, I utilized my software engineering abilities to create a tool that allows patients to handle their health information via smartphones.

That platform can now be used to improve medical research by collecting RWE (Real World Evidence), EHR data and PRO (Patient Reported Outcomes) while facilitating DCT (decentralized clinical trials), HEOR (Health economics and outcomes research) and post-market studies, quality of life surveys, telemedicine, remote patient monitoring, and continuity of care. You can read our story at http://bit.ly/a7vkblogen

  1. Can you tell our audience about Andaman7?

Andaman7 was created in 2014, and we’re located in NY (USA) and Liège (Belgium).

Andaman7 is a Belgian-American digital health company focused on improving healthcare and medical research for patients, doctors, and researchers. The company’s particular strengths are in Real World Data (RWD), Quality of Life (QoL), Patient Reported Outcomes (PRO) and HEOR studies. We enable secondary use of data coming from hospital EHRs, lab results, devices data and surveys directly from patients.  Andaman7 is the first platform enabling “patient mediated research”.

Andaman7 ‘s patient centric health intermediation platform is designed to: 

1 – help patients better manage their health data  

2 – enable outcome measurement for pharma and research  

3 – support disease management for hospitals and doctors.   

Andaman7’s unique “security by design and privacy by default” architecture does not store medical data in the cloud. Data is only stored on the edge of the network (on mobile devices) and exchanged in a distributed peer to peer method. 

As I explained above, I’ve created Andaman7 after a difficult personal journey (2 cancers in the family).

  1. What problem is Andaman7 solving & how? 

Andaman7 is solving the problem of fragmented health records and inefficient communication between patients, clinical researchers and healthcare practitioners. The traditional paper-based health records and fragmented digital records across different healthcare systems can cause delays, errors, and miscommunications, which can ultimately result in poor health outcomes for patients. Clinical research is also hampered by poor health data quality and availability.

Andaman7’s platform allows patients to store their health records on their smartphone – a guarantee of total privacy and high security.  Then the research industry can invite patients to contribute to research by answering questionnaires and sharing part of their EHR data.

  1. What have been the biggest achievements of Andaman7

Andaman7 has pioneered a number of important initiatives like patient mediated research, decentralized clinical trials (DCT), the unique combination of a PHR (Personal Health Record) for patients with tools for research (ePRO, eCOA…), the storage of all health data on the edge (on the smartphone, not in the cloud), as well as a number of technical innovations serving business needs in a very efficient manner (see  http://bit.ly/a7TechInno).

We are proud to serve patients first in their need to control their health data, then offer them ways to contribute to clinical research.

  1. What have been the biggest challenges for Andaman7 & how did you overcome them?

The market is extremely fragmented and most solutions have a national market (EHR vendors mainly) while clinical research is often an international project.

The lack of interoperability is one of the most frustrating problems, even though it has improved in the US in the past years (but not in other parts of the world).

  1. What are you most excited about in healthcare at present? How do you anticipate healthcare will change in the next 5 years?

Many stakeholders mention “patients first” in their communication but don’t do anything concrete for patients.  Andaman7 was created by patients (see http://bit.ly/a7vkblogen) and we aimed at offering a solution to patients before anything else: now, with Andaman7, patients can get a copy of their health data locally on their smartphone and be in full control of that data.  It is useful for them to understand their condition better, follow its evolution, ask for a second opinion, and globally be in control of their health data, hence of their health.  This is the social project of Andaman7, and everything is free for patients.

Then, in a second step, we offer to patients to contribute to clinical research and be part of studies (clinical trials, DCT, phase 4 studies, post-market and HEOR studies,…).  

Sponsors pay Andaman7 to run the studies, thanks to our advanced mobile tools for clinical research (eConsent, ePRO, eCRF, drug management, pseudonymisation…). 

What is unique is that our clinical research tools run on the same platform as the PHR of patients… this leads to more complete, rich and up-to-date information for sponsors (including what is called “real world data”).

  1. Do you have any other key messages for the audience?

It’s important to really include patients in clinical research.  Real World Evidence is becoming a necessity.  And Andaman7 is pioneering “Patient mediated research”.

 

Contact Details

 

See the full article here and on our digital archives

Andaman7 and EHTEL - New collaboration !

Andaman7 is proud to join EHTEL

Organisational description

Andaman7 is the first solution to support all three actors - patients, care providers and researchers - in their battle for better healthcare. With its unique, patient-mediated technology platform, Andaman7 helps manage diseases, measure outcomes, and empower patients all over the world and can support, partner or offer a white label service – usable under their own organisational label – to all stakeholders across the health and research ecosystem. Andaman7 was launched in 2014 and has been developed over several years (and is being continuously improved). Based in Belgium and NY, USA, it serves an international range of clients. 

Activities and interests with respect to digital health

Andaman7 includes  modules for decentralised clinical trials, real-world evidence (RWE), quality of life studies, electronic patient reported outcomes (ePRO), and electronic clinical outcome assessments (eCOA). These modules make decentralised research trials easier, cheaper, and better for all stakeholders across the spectrum. 

Andaman7’s specialist expertise also covers: 

  • Personalised, citizen-centric tools with a focus on data protection 
  • RWE to complement the focused parameters studied in traditional clinical trials, get insights on drugs usage and new applications, and support post-marketing studies
  • A life-course overview for longitudinal studies, particularly exploring data hidden in time for complex conditions like cancers and rare diseases
  • Diversity of data enabled by digital solutions, global interoperability, and the potential for developing countries, for example, to skip costly healthcare and trial infrastructure. 

To learn more visit: www.andaman7.com

 

Source: EHTEL website article and A7 digital archives

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