Andaman7 founder and CEO, Vincent Keunen explains that current clinical research tools prioritize sponsors over patients, but patients want control of their data via a powerful, private PHR on their smartphone.
I am constantly amused, but most of the time frustrated by all the companies active in clinical research that keep saying that the patient is important. But at the same time, it is obvious that they mainly focus on their own business, which is to execute clinical research.
Yes, in a sense, they work for the patient if they are trying to find new treatments that will benefit them. So, yes, they are working for the patients—but in the long-term. What about the short term?
All the platforms and digital tools I have seen have been built first for clinical research—then add features for patients as an afterthought. Features to simplify the process of the clinical trial. Features to ease the collection of data for the sponsor of the study. Features to motivate the patients to stay in the study.
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